This is the story of our twin girls, Sydney and Carynne, and their struggle with Spinal Muscular Atrophy Type 1. They struggled with the genetic disease for 5 1/2 months before losing their battle in February 2009.
Wednesday, April 22, 2009
One more thing...
Jake sent me this video one day back in December. I was at work and it was so nice to see Rynner in my Inbox!
Hello to the proud parents of this beautiful baby girl! I have been following since right before the girls went to heaven, but I would like to know their whole story. When did you find something wrong with their health?
That brought the biggest smile to my face...
ReplyDeleteHello to the proud parents of this beautiful baby girl! I have been following since right before the girls went to heaven, but I would like to know their whole story. When did you find something wrong with their health?
ReplyDeleteIn my prayers,
Tarsha
What a beautiful little girl and such a sweet video. I am sure you cherish it very much!
ReplyDeleteThinking of you!
oh, sweet carynne! what a lovely video, thanks for sharing! those little sweet noises and squeaks...so sweet. :)
ReplyDeleteI miss that sweet little voice, I was giggling as I was watching it. Love you Rynnie doodles! :) Auntie Jess
ReplyDeleteSuch a sweet and happy girl!
ReplyDeleteWhat a sweet, beautiful little girl:) That brightened my day.
ReplyDeleteso precious. There is one lucky angel out there, holding that sweet baby love and her sister <3
ReplyDelete