Riley ice-skate-a-thon

Hello all it's Brook's friend Jess, I took a few pics of the group and Brook wanted me to share.

Brook and Jake. Brook took home my award for best balance.







Brook, Jake, and Sean. Jake and Sean tied for my award for best effort.







Jake, Sean, Brook, and I. We had lots of fun and it was awesome to support Riley.



Sonya and Brook. Blurry image is due to the photographer unstable on her skates ;)



Sonya and I. Sonya took home my award for best rookie skater. I took home my award for most falls! Jake received an honorable mention for multiple falls.

A little love

In honor of Valentine's Day, I thought I would take a little time to talk about me and Jake.

One statement we hear all the time (at least once a week) is "I don't know how you guys do it." And to that I usually say that I don't either. I can't explain why I am still here or how I am able to wake up every morning or how I am able function in a semi-normal way. All I know is that I am here and so is Jake and sometimes, even when we're alone on a raft in the middle of the ocean, we're still here together.

Trust me, we have our moments! There are days that we want nothing to do with each other. There are days when we get really mad at each other for really little, insignificant stuff. We will yell at each other, storm away in anger, slam doors and break down in tears of anger. We don't know why we act the way we do, it's just that sometimes we get all of these bottled-up emotions and there is nowhere else to throw them except at each other. If I could explain it, I would, but it's like they're just there and sometimes they make no sense at all.

Thankfully, we usually recognize what we're doing to each other, and when the dust settles, we come back to each other, seeking forgiveness, kind words, hugs and usually a trip to get ice cream or coffee to talk it out and make things better. Once we're back to good, we see that it is still just us, together, trying to survive with each other and hopefully get better with each other along the way.

So to Jake, I am so thankful that you are on this road with me, because I could not have walked this with anybody but you. You put me in the folds of your arms when it gets to be too much for me and you let me know I am safe and that we will get through this together. You predict a bad moment or a sad memory sneaking up on me and you put out that fire before it starts to burn out of control within me. You tell me what I need to hear, when I need to hear it, but most importantly you know when to say nothing at all and just let me have my moment. I can only hope that I have been as good a partner to you as you have been to me. I can only hope that we continue to survive together and that we never lose sight of what we are, what we have, what we've had and what we hope to be one day.

And one more note...a year ago today a wonderful woman came to take pictures of the girls. She lovingly gave of her time and resources just so that we could have some beautiful memories. I am so thankful for the images she has given to us. There is no way we would have known at the time that one short week later our girls would be gone.

A quick bit of peace

I was reading through an article today about a young man and his experience at West Point. It took me back.

About a month after the girls died, Jake, Megan and I drove out to the east coast where we met up with Patrick, who had been at a work conference in Baltimore. We spent the following days just driving along the east coast, going through D.C., Baltimore, NYC and further north to Niagara Falls. Along the way to Niagara, we stopped at West Point Academy and took a tour of the facilities. It was beautiful and awe-inspiring. Standing at a lookout at the top of the river, I finally felt peace. It was the first time I had felt that peace in a long time. It was brief, but it was there. And silly me, I had almost forgotten how wonderful it was. I'm lucky that memory came back to me so I figured I needed to get it out.

On a side note, Niagara was not very peaceful, in fact it was pretty noisy. Going back home, through Cleveland, was not peaceful either, but that is for another post.

Did you see this?!?! ----->

That's right! $1200 so far! I am so so impressed by how generous our friends, family and followers are!

So, I was totally off with the date of the skate...it is actually this weekend, January 23rd. Our goal is to make this 23rd better than the previous 2. Jan. 23rd, 2009 is the day the girls were diagnosed with SMA. Jan. 23rd, 2008 is the day that our dear friend, Little Joe, left us. I've never really talked about Little Joe on here before, but through his suffering, he taught us something very very important. He taught us, as a circle of friends, how important we are to each other; how much we all love each other; how much we are really there for each other. I've often wondered if other groups of friends function like our little family? I know for a fact I could not have survived this last year without the love and support of everybody around me and I hope that others are lucky enough to feel that same love and support from their friends.

Help Riley!

As some of you may know, when the girls were first diagnosed with SMA they were at Riley Hospital for Children. I've always had a soft spot in my heart for Riley because I was a Riley Kid myself. As a child, I visited their Pediatric Ophthalmology Department every 6 months and when the girls became Riley Kids, I felt even more energized to help out such a great hospital. We were so lucky to receive such great love and care from the doctors, nurses and staff at the hospital, especially from our favorite nurse, Megan!

This weekend, Jake and I are doing an ice-skate-a-thon to help raise money for Riley. If you would like to help out by donating a dollar, I would be very grateful! I know times are tough, so if you can't donate, at least leave a comment cheering us on...neither of us are any good at ice skating and we each have to do 100 laps...YIKES!!

To donate, please visit https://www.firstgiving.com/brookpritchett. Thanks again!

Grumpy old lady

I am a grumpy old lady. I was reminded again today of how much I don't like change. I think I just get too comfortable with routine and when that routine is changed up, it sends me spiraling downward. I started a new job today. It's not the same. It isn't the same beautiful drive downtown at my own pace, it's a drive in heavy traffic and construction. It isn't the same lunch, it's a 'get in your car and drive to a drive-thru instead of walking along the brick sidewalks of downtown' lunch. It isn't the same people, it's people that don't know me or my story.

I think one reason why I hadn't posted in so long is because I got into a routine of being at home and being comfortable, surrounded by happy pictures and happy memories of my girlies. And today, during that awful drive, a lot of negative feelings came back.

In the first two hours of my new job I was asked if I had any kids. Before I got to work I told myself that I wouldn't bring up anything about the girls for a while because I wanted my co-workers to get to know me first. When I was asked, I just kind of shrugged on the outside. On the inside, I was having a full-blown panic attack. How disrespectful of me to not answer that...to the person asking, but most importantly, to my girls. I just froze and didn't know what to say. My face got hot, my palms got sweaty and all the air escaped my lungs. I just wish I knew what to say to people. I feel like when I answer that question, all I do is bring people down...but if they had only known my girls and what amazing, sweet babies they were, it wouldn't be so sad.

So, I guess the question is, what's the best way to answer such a difficult question???

Merry Christmas Sweet Girlies!

I'm pretty positive I've posted this picture before but, I just love it. 3 little baby Santa's, this picture makes me melt! "Nate and his girlfriends!" We had so much fun last year posing you in your little Santa hats, this Christmas won't be the same without you two.Miss you lots and love you bunches.

~Auntie Jess~